We met with Ben’s Denver treatment team yesterday afternoon to discuss our options. We’ve had many wonderful doctors throughout Ben’s nine years of therapy but Dr. Greffe here in Denver is the bomb-dot-com. When he called me yesterday morning, his first words were “I’m so sorry.” What I like about Dr. Greffe is that he …
Search results for: For The Love of a Team
How I missed the boat…
Most people who regularly read my blog understand that I am a big fan of music, especially classic rock. For me, there was never a reason to journey far past my love of such masters like The Beatles, The Eagles/Joe Walsh, Peter Frampton, Elton John, and Boston. There are, of course, some bands that I’m …
Trade show
In 1993 I was a social worker for a mental health facility in Columbus, Ohio. My job was to rehabilitate people living in the state hospital – mostly schizophrenics – to the point where they could function in the community. Why would I do this, you ask? Well, state hospitals cost a lot of money …
Back in NYC
I sat in Ohio and waited for my mother to either get better or pass. She didn’t do either. So I ran back to Colorado to get ready for Ben’s next round of antibody therapy. I packed. Got to the airport. Got through security with all of Ben’s liquid medications (they make me open all …
Not a fan of Urgent Care
This cancer baloney stinks. Yesterday was Ben’s first day of his fourth cycle of this crazy antibody therapy and it was TERRIBLE. Let me start at the beginning. I received a call from Ben’s treatment team asking if I would mind if Ben was assigned to “2nd bed” for the upcoming cycle of 3F8. Second …
National Childhood Cancer Awareness Month
I was wearing a pink turtleneck and tan pants on the day that my world was ripped out from under me. It was February 19, 2004. A Thursday. I was at work doing what I like to call “employee relations”, which was really just a lengthy run of “cube-hopping” to chat with my co-workers (one …
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It’s “Meteor Watch” Day
I’m so glad we’re not in NYC for Meteor Watch day. The light pollution in the city is so intense and would definitely mar our ability to catch a glimpse of any shooting stars. It makes me wonder if city dwellers are ever interested in heading out for a nature trek to see some of …
It’s “Repeat Day”
Sorry. Sorry. Sorry. Sorry. Sorry. And, I repeat, sorry. I haven’t been writing/updating lately because I just couldn’t. I can’t really call it a writer’s block because I’ve had plenty of material – perhaps too much material – and it all went rushing through my head over the course of this past month. All I could …
It’s “Frozen Food” Day
My thighs and bottom have taken on the appearance of a bag of frozen peas thanks to my lack of exercise (and general aging process) in the months since Ben’s relapse of neuroblastoma. But if walking the streets of Manhattan doesn’t lead to my having “Buns of Steel”, then there’s no hope for me, because …
It’s “Be Humble” Day
“Oh Lord it’s hard to be humble when you’re perfect in every way. I can’t wait to look in the mirror ‘cuz I get better lookin each day. To know me is to love me, I must be a hell of a man. Oh Lord it’s hard to be humble but I’m doin the best …
Stronger Than I Look 