There’s a tremendous backlog of information taking up space in my brain – so many things I’ve wanted to write about but haven’t – so I’m calling this post “brain dump” and whatever comes out comes out. 2017 has been quite the roller coaster. January knew that our swing was weakest when it came to …
Author Archives: sarah
Checking in…
It looks like I’m becoming a “blog once a quarter” type of person. Sometimes I feel guilty about that because I genuinely do want to keep everyone updated on Ben. But honestly? I’m tired. Plus, Ben and Madeline have both recently told me that I talk about Ben’s illness way too much. I guess I …
Whac-a-mole
My brain wants to shut down and my body wants to give up. I can’t make them connect right now and despite trying to keep afloat with humor and a “we’ll beat it again!” attitude, I’m concerned that I’m running way too far past empty to keep up this charade. For those of you who …
Despite all the hard work I’m doing on changing my perspective, there are days here and there where I just crumble like a delicate butter cookie under the weight of an 18-wheeler wearing snow chains. Yesterday was one of those days, so today I’m sporting what I’ve dubbed a “sad hangover.” I’m all achy and …
Love is the Answer
I know, it’s been a while. I decided to take some time off to work on myself. The beautiful thing is that it coincided with Neuroblastoma giving Ben a pretty big break so I’ve had some extra time. As you may remember, I’ve been working on obtaining my yoga therapy certification. I started the final …
Down Dog
You might have heard that our beloved Yoshi – a completely adorable, yet ridiculously unintelligent dog – died this past April after a run-in with some raspberry flavored IceBreakers sugar-free gum. I had no idea that the Xylitol featured in this sort of gum was toxic to dogs and would most likely result in liver …
For my Sister
My dear, darling Sister, Today is going to be very difficult. Attending Anthony’s graduation without his being there has to be another knife in your weary heart. I’m sorry I’m not there to celebrate his achievement and hold your hand as this milestone he worked so hard for passes you by without him in attendance. …
Safe Space
I sat on his bed for what seemed like hours, gazing at him and looking around his room at the few things he found important enough to display: a couple of hockey items, the plaque he was awarded from the Aurora Police Department, and then the hordes of Nintendo collectibles – his most prized possessions. …
Going for the Win
I know I’ve shut down a bit lately. Getting the news that Ben’s disease has progressed despite being on chemo really threw me over the edge. This has never happened before. Therapy has always made him better. Yes, he relapses a lot, but therapy has always helped. And now that it isn’t, well, that’s simply …
Kirkersville, Ohio – the place where I grew up – is a teeny tiny village about 25 miles east of Columbus. The population of this village nestled along the South Fork of the Licking River is approximately 500. I didn’t even know I grew up along the South Fork of the Licking River, (which I …
Stronger Than I Look 