Summer Son

There’s an element of every season that I love, but if I had to choose, summer is probably my least favorite. I’m very sensitive to heat and while I love being ON the water (preferably in a small craft like a sailboat or a canoe) I don’t love the beach. I’ll take a snowy mountain peak any day.

And since I was born during the summer, I never got to have a birthday party in my classroom. This always irked me. When I found out that I was pregnant with Ben and had a due date of late June, the lack of a birthday party during the school year was one of the first things that crossed my mind. Priorities, I guess. I just wanted my unborn child to have a better life than I’d had. A birthday party during the school year is a child’s basic right. Ask any summer baby. They’ll all agree.

The impending onset of this summer has had me in a jumble of nerves. In my daily meditations, I tried to explore why I was so anxious about this coming summer, other than the basic disdain for sunburns and heat strokes. With Ben’s quarterly scans usually hitting around the start of each season, I came to the realization that every single relapse he’s had has occurred during the summer months. He had emergency surgery on my 41st birthday, which resulted in his first relapse. His second relapse was right after his 12th birthday. And then his third relapse was just a year later, on July 4th, 2014. Three recent summers overshadowed by recurrent disease. I guess if I had to find a silver lining in all of that, at least we were in an air-conditioned facility for the hell he faced.

So, when these most recent scans rolled around last week, I was beside myself with anxiety. His treatment team has said “it’s not a matter of ‘if’ it comes back, it’s a matter of ‘when.'” Now, I take all of this with a grain of salt. Statistically speaking, Ben is a freaking miracle. I’ve learned (and have had to relearn time and again) to surrender to the information we’ve been given. There’s nothing I can do about it except for love my Ben with all I’ve got. I try hard to not worry all the time and I’ve been doing a pretty good job. But like any human being suffering from PTSD, triggers make those raw emotions rear their ugly head.

We’ve been through hell. The last thing we want is to go through it again and it’s unfortunate that we’ve been told the whole “when, not if” factoid. I desperately want to know everything that’s happening inside my son’s body, so I long for the scans, yet dread them at the same time, because they have the potential to break my heart all over again.

When we got the word last week that Ben had no evidence of disease, I cried in relief. And then I threw up. Twice. I had been walking around with all of this heaviness, setting myself up for the possibility of another relapse, and when it didn’t come, my adrenaline had nothing to do. I’m not complaining, just explaining the whole barfy thing.

Finally. We get to have a summer.

We’re going to enjoy every sunburn. Every heat stroke. Find lots of adventures, like going to the Sand Dunes. Perhaps take that vacation that Ben’s been aching to take? Ben will have his 14th birthday outside of the hospital (see his Facebook page “I love The Bean” for birthday details… all are welcome!) And Thursday, Ben and Mad are headed to Wapiyapi, the most amazing summer camp catering to our precious population.

And I’m going to simply breathe. It’s going to be a good summer, indeed.

 

 

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2 Comments

  1. You deserve the Best summer ever. I hope you make a million wonderful crazy memories together. Have fun and let loose. We are all so relieved and grateful for Ben’s good scans. Hugs for all. Have fun at camp Ben and Maddy.

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