Little Lambs

When I was a kid, I loved visiting old cemeteries and making grave marker rubbings using a brown piece of craft paper and an old crayon. I’m not sure why I’ve always been intrigued by visiting people who’ve passed from this realm, but I simply love the peaceful feel of an old cemetery. The headstones were so creative and ornate. And I especially loved that they marked the exact amount of time spent on this earth. If I were to die today, my stone would state:  Sarah H. Washburn, Aged 46 y, 10 m, 6 d.

Sometimes it would even specify how you died. Mine might state: Killed while interfering with a piece of scum berating her child during therapy (No kidding, this actually happened. Not the death part, but the scum/berating part. Gross.)

Regardless, I adore the fact that those old stones let people know exactly how long people existed in their earthly form. Nowadays, most stones make you do the math for yourself. Of that, I am not a fan. Math has never been my thing.

Anyway, the recent weird weather in Colorado thwarted our planned monthly adventure, so May’s trip was a repeat to Idaho Springs for a soak in the Indian Hot Springs. It was rainy, which is why our original plan was scrapped. Personally, I love a car trip in the rain as long as it’s not a torrential downpour, and with the kids distracted in the backseat with their electronic devices, they didn’t mind.

After our soak at the springs, we drove up near the entrance of Mt. Evans. It’s a lonely stretch of road – and absolutely gorgeous in the fall with all the golden aspens – but on this rainy day there wasn’t much to see. We pulled over at an old cemetery on the side of the road, intrigued as usual. The grounds were unkempt and the drive around the loop was nearly impassable as thoughts of bottoming out my car became a concern, but some of the markers were phenomenal. One was shaped like a log cabin. Another was still immaculately cared for despite their beloved being gone for well over 100 years. But as I looked around there were a tremendous amount of markers with little lambs on top: the traditional marker for a child.

As I stated earlier, the cause of death was sometimes mentioned: Typhoid fever. Diptheria. Cholera Infantum. Tuberculosis. A variety of Pox. Many of these tiny markers listed horrific diseases, many of which are now nearly extinct. Well, except the anti-vaxx community, who may be bringing them all back. Sorry. I think not vaccinating is a poor choice. Why on earth invite that sort of illness back into our world when it’s so preventable? If there was a surefire way to beat cancer, I’d be all over that in a heartbeat.

Don’t get me wrong, I can fully understand people wanting to stop giving their child something that might cause another challenging affliction – like autism – but is the risk of having your child die better? I mean, Ben goes through a tremendous amount of therapy that very well may end up killing him. It’s no secret that this very thing has happened to many other children we’ve known, dying from complications of therapy, and that totally sucks. But I know we’re helping to pave the way to a FUTURE for other children like him. I hate that he’s been a guinea pig of sorts, but what are our options? Plus, he’s still here. Despite his hearing loss. Despite his severely curved spine. Despite his “chemo brain” or lack of focus. Despite missing adult teeth and a shriveled kidney and short stature and a multitude of scars and all the pain he’s endured and the gazillions of treatments he’s had over the years. But if we found a cure for this, and people chose to turn their back on it because their child might have some developmental disabilities because of it? Well, that makes no sense to me. Honestly, I would be offended. My son’s life matters. He goes through what he does in hopes of not only saving his life, but to make others like him not have to fight so hard. He’s a true soldier in this fight against cancer.

I’m committed to his life. I want his years, months and days to amount to something. And it is. It has been. When we think his quality of years, months and days are wavering, then we might think otherwise. But I feel that’s a long time away. I know it is.

Children dying is nothing new. In fact, it was common to lose a child back before all the medical advances became readily available. And I know that if Ben were to have been afflicted with what he has today back at the turn of the century, he wouldn’t have lived for very long. Then again, I probably wouldn’t be here myself because of my own health ailments.

I didn’t mean for this to be an attack on anti-vaxxers, it just got me thinking about how fragile life is and how we should applaud what’s available to us, even when it’s not perfect. Every day of our lives matter.

Every single day.

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2 Comments

  1. Sarah, I love reading all of your articles. I wanted you to know that you, Ben and Maddie are in my prayers every day. Ben is such a courageous young man and I admire his ability to take it in stride. I just can’t imagine how you cope with all the things that have come your way. Having lost a child at 16, due to a traffic accident, I can’t imagine how you must feel not knowing what the next day will bring. My loss was sudden and unexpected… still not easy but… the not knowing from day to day must be extremely stressful and difficult. But each time I see your posts, you are always upbeat and I greatly admire you for setting such a good tone for your family because I know you are probably crying inside. I can see that you have a very large support group which is a wonderful blessing in times like these. I hope your NYC trip is a success and that it will be beneficial to Ben. We all continue to pray for a cure for this insidious disease. May God bless you and your family and keep you all safe in your travels. Love In Christ.

    Janie

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